I know I have not updated this blog for a long time. A lot has happened in between. I checked my last post was when Josh had his first steroid free remission. To fill in the gap, Josh had a relapse episode just a month after I posted that last post 😦 It was a…
Steroid Free!
My little baby finished his steroid last week. It made me happy and anxious at the same time. I am happy coz he is finally steroid free, anxious becoz I dunno how his kidney wud cope up without steroid. Today we went for a check up. The doctor was pleased with his result. He said…
6 months
http://odb.org/2017/03/18/somethings-wrong/ It has been six months since Josh was diagnosed of Nephrotic Syndrome. Today quiet time reminds me of what we went through the day we found out that Josh’s sick. Six months has passed, Josh is still under medication. Each passing day I praise God for His never ending love and care. I will…
Thank You
We are so grateful to have caring friends around us. Our dear friends committed a day to fast and pray for our baby. Thank you for your loving thoughts and support.. May God bless you all 🙂
First Fever
November 20, 2016 We brought Josh to a movie last two days. I just wanted him to have a little fun. He diligently put on his face mask the whole time we were at the mall. No complaints. Such a good boy. We had a fun time that nite. The next morning, my poor baby…
So Far So Good :)
Another check up day yesterday and I thank God everything went okay. Josh’s urine test result was good. So starting today, we will taper down 2.5mg of his steroid dosage every two weeks. Today marks his second tapering. For another two weeks time, he wud have 17.5mg of steroid every other day. The doctor asks…
2 Weeks after 1st Tapering
Josh just had his check up today, after two weeks of tapering his steroid dosage from 30mg everyday to 20mg every other day. His urine test showed flying colors, his doctor was also so satisfied with the result. Praise God!!! Mommy is so happy, I feel like dancing. Woohoooo!! And on top of that, my…
Hey Happy Baby!
We start to taper down Josh’s steroid last Sunday. He took 20mg of Prednisone on Sunday morning and would only take another dose today (on Tuesday). So he only took his medication once within these two days. Call me being too sensitive, but during these two days I noticed changes on him. In a positive…
Be Patient!
The internet connection was down this morning when I was trying to help Josh watch his favorite Pororo series. Josh was sitting beside me enjoying his breakfast as I tried and tried to no avail. Finally I grumpily said, ‘Ahh! It won’t work! Internet mati, de!’ He just looked up to me and said ‘Be…
An UpdateÂ
We went to the doctor today and had Josh’s urine tested. Praise God everything is good. We will start tapering down Josh’s steroid tomorrow. So his medication will be: 1. 20mg of Prednisone every other day. 2. Ossovit syrup twice a day. 3. Interlac I asked the doctor to prescribe him probiotic because poor baby…
3 weeks on Prednisone
September 25-October 15, 2016 The last three weeks was the most exhausting time. I think Prednisone has taken its full course. The side effects were just awful :(( Josh has become little food monster. He keeps asking for food literally every five minutes. The good thing is now he starts to gobble down veggies, he hated…
A Week after Prednisone
September 24, 2016 So we went to the doctor today. After one full week of Prednisone. We had Josh’s urine tested at the hospital lab. The result came back and we were super happy. It showed no more trace of protein in his urine, means his body reacts well towards Prednisone. This first week was not…
Our Journey of Faith 