Josh just had his check up today, after two weeks of tapering his steroid dosage from 30mg everyday to 20mg every other day. His urine test showed flying colors, his doctor was also so satisfied with the result. Praise God!!! Mommy is so happy, I feel like dancing. Woohoooo!! And on top of that, my…
Month: October 2016
Hey Happy Baby!
We start to taper down Josh’s steroid last Sunday. He took 20mg of Prednisone on Sunday morning and would only take another dose today (on Tuesday). So he only took his medication once within these two days. Call me being too sensitive, but during these two days I noticed changes on him. In a positive…
Be Patient!
The internet connection was down this morning when I was trying to help Josh watch his favorite Pororo series. Josh was sitting beside me enjoying his breakfast as I tried and tried to no avail. Finally I grumpily said, ‘Ahh! It won’t work! Internet mati, de!’ He just looked up to me and said ‘Be…
An Update
We went to the doctor today and had Josh’s urine tested. Praise God everything is good. We will start tapering down Josh’s steroid tomorrow. So his medication will be: 1. 20mg of Prednisone every other day. 2. Ossovit syrup twice a day. 3. Interlac I asked the doctor to prescribe him probiotic because poor baby…
3 weeks on Prednisone
September 25-October 15, 2016 The last three weeks was the most exhausting time. I think Prednisone has taken its full course. The side effects were just awful :(( Josh has become little food monster. He keeps asking for food literally every five minutes. The good thing is now he starts to gobble down veggies, he hated…
A Week after Prednisone
September 24, 2016 So we went to the doctor today. After one full week of Prednisone. We had Josh’s urine tested at the hospital lab. The result came back and we were super happy. It showed no more trace of protein in his urine, means his body reacts well towards Prednisone. This first week was not…
Second Opinion
September 17, 2016 Josh stayed at the hospital for 3 long days. He was being a very good boy, amazed me. He diligently took his super bitter medicine, talked nicely to the nurses. Made me a proud mommy. He looked so much better when he was discharged. No more swelling, he urinated almost 1kg of…
Admitted to Hospital
September 14, 2016 I went to school with a heavy heart today. My husband said he’d be the one who’s going to get the referral letter from the doctor. After he got the referral letter, he texted me the doctor’s name. I quickly browsed on the doctor’s name and checked on his schedule at Family…
Diagnosed with Nephrotic Syndrome
September 13, 2016 After the whole week of swollen eyelid, we decided to bring Josh to the doctor today. My feeling said that something was not right. Altho my baby had been as playful and active as before, still I felt like I needed to bring him see the doctor. Josh with his puffy eyes….
Our Journey of Faith
Ever since Josh was diagnosed with Nephrotic Syndrome, I spent hours browsing for any information I could get about this disease. Nephrotic Syndrome is a condition which causes the kidneys to leak large amounts of protein into the urine. I came across many websites giving information about Nephrotic Syndrome from medical point of view, but…
Our Journey of Faith 